Hi all ,
I have Miyoshi Myopathy which ive had for over 8 years now (im 26).
I had a Neurologist (Dr Victor Patterson) at the City Hospita...
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Hey Y'all (I love living in the South :-)
A lot of things are going on in my life right now, and I need to pick some brains, and who better tha...
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I am curious if anyone else has had a rapid progression of sympoms in Limb Girdle MD. Seem to be 2 weeks or so and I am already having slight troub...
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Hi, I have not written for awhile, still trying to accept a diagnosis of MD2. Let me tell you my story. Three times in my life I have had problems...
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I'm 19. And healthy. I've been having these muscle twitches for about a little over a year. And I didn't think anything of it.. because it really di...
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Limb Girdle MD, I was just wanting some general info. After losing 21 lbs of muscle mass, neurologist has given this as probable cause. Also include...
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Hi,
I am suffering from Muscle Wasting this is my story:-
I caught some infection/virus from a lady in a massage parlour 3 months ago, The G...
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cant get to sleep when i lay down muscles fall a sleep and feel very irratated and and weard not hurting but i cant lay down for too long need it to...
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I am scheduled for a muscle biopsy in September. I am pretty sure it will be taken from my leg. The nurse indicated I would need a few days off af...
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For those of you at my state of progression (barely walking, barely getting out of chairs, etc), how do you manage to do things like:
Go to the ...
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This board has been pretty quiet lately, so I thought I'd just post an update on what's been happening on my end of things!!
With a diagnosis of...
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Im wondering if anyone can help me.I know muscular dystrophy is genetic.The question I want to ask is: My son is 3years old.My mother inlaw had musc...
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why does muscles achs starts when you lay down at night on my thighs and legs
...
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Neurologist has give me a likelyhood chance of about 95% that I have some form of MD. Genetic testing takes 1-2 years to receive and I am frustrated. This time ...
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Hi There I'm a 26yo female. My father has muscular dystrophy, either Myotonic or Distal (I think). We can't really work out the strain because its a unique case...
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Hi, I have a question. I was diagnosed with MD2 a few months ago. I am seeing a physical therapist now, hoping to maintain my muscle strength. I have not fal...
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Hello All,
I was interested in getting a portable lift. I was wondering if anyone uses one or have used one. It will primarily be used when I am travelin...
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Hi, I got a copy of my lab report from Athena Labs but don't understand what exactly the results mean. I called Athena but am afraid we will be playing telepho...
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I’m going camping with my family in a few weeks. As many of you regular posters know, I have LGMD and have A LOT of trouble walking, climbing and getting ...
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I have a 15mth old son who my pediatrician is concerned about having muscle issues. She is sending us to have a CPK test for him this monday. i am worried sick...
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Hello all,
I have been searching for a diagnosis and help for about a year now. I'm hoping one of you has a story similar to mine or information that could...
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im a 22 year old lifter. I have no symptoms yet of my limbgirdle dystrophy. should i continue to lift?
I can still run and jump and build muscle
...
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Hi, I have myotonic dystrophy type 2. I have been prescribed Questran for cholesterol. Welchol was also suggested. I went for the Questran because it was more a...
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Hi. My sister's son has just been diagnosed with Duchenne MD. I have been told I could also be a carrier and have started genetic testing. I have a beautiful, w...
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Hi, my 35 year old daughter was told today that her CPK was elevated. It was 300 something. Although at this point she is having no muscle weekness, does that...
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